Is PMDD a Disability?

Close-up of a person gently holding their hands and adjusting a ring, conveying quiet reflection.

This isn’t a question you usually ask on a good day.

You ask it after a week where everything felt harder than it “should” have. After you’ve cried in the bathroom between meetings, or stared at your screen trying to remember what you were doing or wondering how you’ll make it through the day. After you’ve been told, directly or indirectly, that you are “a bit much”, “inconsistent”, “not yourself lately”, “too sensitive”, “not performing”, or “not coping”.

And underneath that question, is PMDD a disability?, there’s often another one:

Am I allowed to need support?

Because when PMDD is in your life, you learn to doubt your own reality. You can have days where you are sharp, capable, funny, switched on, and on top of everything. Then you can have days where it feels like your mind has turned against you. Your body feels heavy, your thoughts feel loud, your emotions feel raw, and the simplest task feels like walking through mud.

That contrast can mess with your head. It can make you wonder if you’re being dramatic. If you should just try harder. If you are asking for too much. If you are the problem.

So let me say this clearly, right from the beginning. You are not imagining it. PMDD can be genuinely disabling. And it is completely understandable to want language, and legal protection, that matches what you are living through.

The honest answer is complicated, and I am not going to pretend it isn’t. PMDD is not automatically labelled a disability everywhere. But disability law in both the UK and the US (and other countries) is rarely about whether your condition appears on a list. It is about impact. It asks what your symptoms do to your day-to-day life, and whether they substantially limit your ability to function, including at work.

The cyclical nature of PMDD makes this conversation even more complex. It isn’t constant. It changes. It fluctuates. Some weeks you might feel like yourself. Other weeks you might not recognise yourself at all.

Living inside that inconsistency is exhausting, especially when you’re trying to explain it in a world that prefers everything to be simple, linear, and easy to prove.


The word “disability” can feel heavy, and you are allowed to have mixed feelings about it

“Disability” can land awkwardly. You might not identify with the word. You might feel an internal resistance to it. You might worry that accepting it means lowering expectations of yourself, or being seen differently. You might be concerned that it will turn you into a “case” rather than a whole person.

And at the same time, you might quietly think, this is disabling.

Because there are phases when it doesn’t just feel a bit harder. It feels life-limiting. It affects how you think, how you relate to people, how you sleep, how you focus, how you regulate emotions, and how you handle pressure.

Here’s the nuance that often brings relief. Disability, legally, is not an identity label you have to take on. It is a protection framework. It exists to create fairness where health creates barriers. You can dislike the word and still use the law. You can be ambitious and successful and still qualify for support. You can be brilliant and struggling at the same time.

Those things are not opposites. They are reality.


What the law says in the UK

In the UK, the key piece of legislation is the Equality Act 2010. It defines a disability as a physical or mental impairment that has a substantial and long-term adverse effect on your ability to carry out normal day-to-day activities.

Translated into human language, if PMDD significantly affects you, and it has been going on or is likely to go on for at least twelve months, you may fall within that definition.

The part that matters for you is this. The Equality Act does not work by listing diagnoses. It focuses on how your condition impacts you.

Fluctuating conditions can still qualify. If you are impaired in a substantial way during certain periods, even if you function well at other times, you may still meet the definition. Many people assume the law only protects conditions that are constant, but that isn’t true.

If your symptoms substantially affect concentration, mood regulation, decision-making, memory, social interaction, sleep, or stamina, especially in ways that impact your work, there is a genuine possibility you are protected under disability discrimination law.

What this means in practice is that if PMDD meets the Equality Act definition for you, your employer has a legal duty to consider reasonable adjustments and to avoid discrimination arising from disability.


What the law says in the US

In the United States, the key law is the Americans with Disabilities Act, often called the ADA. Like the UK, it doesn’t rely on a fixed list of diagnoses. Instead, it looks at whether you have a physical or mental impairment that substantially limits one or more major life activities.

Major life activities can include concentrating, thinking, sleeping, interacting with others, regulating emotions, and working. These are exactly the areas PMDD can affect in powerful ways.

The fact that PMDD fluctuates does not automatically exclude you. If you are substantially limited during active phases, you may still qualify for protection and workplace accommodations under the ADA.

So in both the UK and the US, the legal question is not whether PMDD is real or serious. The question is how it affects you over time, and what support is reasonable at work.


Why this question hurts so much at work

Close-up of a person in a black coat holding a notebook and green handbag outdoors, symbolising work, reflection, and navigating daily life.

Because work is where you are expected to be consistent. It is where you are measured. It is where professionalism often means acting like you are not human.

When PMDD hits, it doesn’t just affect how you feel. It affects how you appear to other people. You might come across as quieter, more reactive, less confident, less resilient, or less organised. The cost is not only internal. It becomes social. You may feel watched, judged, or misunderstood.

And the hardest part is that you might judge yourself first.

You might overcompensate by pushing harder, masking more, apologising constantly, or working late to make up for the days you struggled. You might try to hide it until you can’t anymore. You might tell yourself you’ll just get through this month, and then it’ll be fine, only for next month to arrive.

If you’re here because something has happened at work, perhaps you’ve been treated unfairly, denied flexibility, performance managed without recognition of your health, or dismissed when you tried to explain what you are dealing with, it’s completely normal to feel overwhelmed.

Instead of giving you a long list of steps, I want to offer you a steadier starting point.


If you think you have been treated unfairly at work, start here

First, ground yourself in facts. When you’re living with PMDD, especially in luteal, your confidence can take a hit and your brain can start rewriting the story into “it’s probably me” or “maybe I’m overreacting.” Quietly documenting what’s been happening is not about gearing up for a fight. It’s about anchoring yourself in reality.

  • Write down dates and what happened, in plain language. Keep it mostly factual (what happened, who was involved, when and where), and if you want to note how it affected you, do it as a separate line. That way you have a clear, objective record, and you are not relying on memory alone.

  • Keep copies of relevant emails, messages, meeting notes, changes to targets, feedback, performance comments, or anything that shows a shift in tone or treatment. 

  • Note what you asked for, what response you got, and whether any support was offered or refused. 

  • If you did disclose PMDD or a health condition, note when and to whom. This gives you clarity, and it also means you are not relying on memory alone when you are feeling wobbly.

Two terms are especially useful to understand here: informal resolution and formal grievance. Informal resolution is where you raise a concern and try to sort it through a conversation, often with your manager or HR support, before anything becomes formal. A formal grievance is a written complaint that triggers a defined process. It usually involves an investigation, meetings, and an outcome in writing. The point of a grievance process is not to “cause trouble.” It is there to ensure concerns are handled fairly, consistently, and with accountability.

You don’t have to jump straight to a formal grievance. Often the most supportive first step is identifying who you can talk to safely. That might be someone in HR or the People Team, your manager’s manager, an internal wellbeing lead, Occupational Health (if your workplace has it), or a trusted union rep. If your manager is part of the problem, it is completely reasonable to go around them and speak to HR or a People Partner first. You can frame it as wanting advice and support, rather than arriving with a demand. Something as simple as, “I want to talk through what’s been happening and understand the right process, because I’m not sure this has been handled appropriately,” can open the door without escalating too fast.

If you decide to raise PMDD in the conversation, you don’t need to share every detail. You can keep it impact-focused: you have a medical condition that fluctuates and, at times, substantially affects functioning. You can say you are seeking support to work sustainably and perform well. It is okay to ask for reasonable adjustments and it is okay to ask for the conversation to be documented, especially if you have previously felt dismissed.

If the unfair treatment continues, or if you are met with minimising, blame, or a sense that you are being punished for symptoms you did not choose, this is where external advice can be incredibly steadying. In the UK, ACAS can explain workplace rights and dispute processes, and Citizens Advice can help you understand legal protections and next steps. If you are in the US, the EEOC offers guidance on disability rights and the reasonable accommodation process. Sometimes one call or one conversation with an external adviser can reduce the panic, because it turns a foggy situation into something you can navigate step by step. One thing to keep in mind: the person you speak to might not be PMDD-aware, so you may need to do a little educating first.


So, is PMDD a disability?

This is the most honest answer I can give you…

PMDD is not automatically a disability in the way people sometimes assume disability works. But if it has a substantial, long-term impact on your ability to function, including at work, it may be considered a disability under UK and US legal frameworks.

And even if you never use that label for yourself, it doesn’t make your experience any less real.

You don’t need to prove you are suffering enough to deserve support. You don’t have to wait until you are falling apart to be taken seriously. PMDD can be life-limiting without being constant. Disabling without being visible. Legitimate even when other people don’t understand it.

If you are reading this with that familiar knot in your stomach, the one that says please tell me I am not being dramatic, let this be your validation.

You are not making it up. You are not weak. You are not too much.

You are navigating something complex in a world that is still learning how to understand it. And you are allowed to seek protection, support, and respect, not as a last resort, but as a way to live and work with dignity.

If you’re unsure about where to start, begin small. Pay attention to what your body is telling you about what feels unsustainable. Write things down when something doesn’t sit right. Ask questions about your rights before you assume you don’t have any. You don’t have to label yourself in a certain way to ask for adjustments, clarity, or compassion at work.

Sometimes the bravest first step is simply acknowledging that what you are carrying is real, and that you deserve support that meets you where you are.


A note before you go

If you want more honest conversations about PMDD and work, you can follow along, or join our newsletter where I share practical tools and real talk each month. 

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